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We passed of course. It turns out that Hospice is not just for the end of life folks. Dave is healthy in every way except for his long term Parkinson's and now dementia and paranoid psychosis. Phew! But I learned that hospice can take care of all his and my needs, FOR FREE through Medicare. We have a nurse come in twice a week to take his vitals, another nurse comes in twice a week to bathe and shave him, and we also have a social worker and chaplain once a month. A volunteer comes in and sits with Dave for a couple of hours while I am at bible study. And if I need a few days away, they will bring Dave to a place where he can be cared for and I can have a vacation. Amazing. There are doctors and pharmacies involved if we need them, and a hospital bed, walker, cane, bath chair, etc. if we request. Who knew? And there is no time limit on this care.
So naturally I am floating on waves of relief and have already begun to get my life back in bits and pieces.
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Undaunted, I redrafted the pattern, made it again and now it fits me. It's not quite a dress in this length, more of a tunic, which I wear with crisp white pants.
I spent a large part of a day searching for all my sewing supplies which got stored in closets and boxes, etc. and have ordered a cabinet to keep them all centrally located in the studio. In doing that search, of course I found other things which had 'gone missing' since I put everything away to focus on just caring for Dave. My reasoning was that if I paid attention to him all day, everyday, things would improve. It did work, but of course I was denying the need to have me-time. Resentment set in, under the surface, and it was a nasty thing. But let's just forget all that and concentrate on how wonderful things are now. Yay!
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Things around the house have improved too. My wonderful brother in law, John, has painted my front door, and it happens to match my blue flower pots. I am so coordinated!
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I'll be keeping you up to date on things more regularly now, as I have the mental space to do so. Hurray!
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Dear Mel, I was so delighted to see your post as I had checked several times. I am very pleased that you have managed to get help whilst you care for Dave and I wish you all the very best.
ReplyDeleteI'm so glad you've gotten set up with Hospice. It is such a fantastic program, and so many people who would qualify don't know about the availability. I can hear the joy and relief in your voice as you write--so important to have some windows of time for yourself.
ReplyDeleteI'm glad you are and Dave are getting the support you each need.
ReplyDeleteWell done and thanks for sharing the info on Hospice. I have been through that with quite a few people. It's nothing to be frightened of. Hang in there.
ReplyDeleteThrilled to hear from you and that all in your life is so much improved!! This hospice word is so tricky isn't it? We went through a similar situation with a relative. We had been trying to do everything ourselves. Finally the doctor insisted on 24/7 help so was qualified. AND it was all covered by Medicare! Enjoy the summer and the beautiful flowers!
ReplyDeleteI'm so happy to see this post!! :) You seem in better spirits. Hospice will be a really good thing for both you and Dave. With love, Becky in Indiana
ReplyDeleteThat IS good news. Great to have you back. Take care.
ReplyDeleteSo pleased to read that we will be hearing more from you again! So sorry to read of poor Dave but gosh thank goodness for the help from your Doctor and Hospice. Enjoy your sewing again and no doubt you'll be out and about more in the garden. Such a relief for you to know that help is now available.
ReplyDeleteAll this is good to know. Both of my parents have dementia and my Mom is in congestive heart failure and is supposed to be on a salt-free diet but my nephew, who is their caregiver, isn't the most responsible child/adult on the planet. She had to go to the ER two weeks ago and they apparently qualify for home health care, which is possibly what you are getting through Medicare. I don't know if they have followed through on that as I know my nephew doesn't like "witnesses" in the house observing what he is and is not doing. They don't need that traditional hospice but they could sure use all of the services that you and Dave are getting.
ReplyDeleteI want to get back to sewing but as you know, plants wait for no man, or woman. A garden is a slave to the calendar and if it's time it's time. I want to get stuff in on time this year, not two months late, even though we do have a late growing season.
I love the color of the front door. The flowers are gorgeous.
My front planter has grown in and I love it. The dogs love it too because I will just sit on the front porch looking at it and they can come over for pets any time they like. I've just moved their celadon green glazed water pot to the front to discourage them from drinking out of the little birdbath I put pebbles in and filled for the bees and butterflies. I've been seeing bees and butterflies every day so the garden is a success. I've had roses, miniature roses, Calla lilies, Hydrangeas and Iris all blooming at some point or another. But the most successful bee magnet is the Alyssum. I will be keeping that going as long as I can. Year round if I can.